May 13, 2008...6:05 pm
My Son Has Asperger’s

After meetings with school specialists, many observations, and a lot of imput, Reagan has received the diagnosis of Asperger’s Syndrome. I always knew he was different. So was I at his age (or now even). He is sweet, quirky, a little clumsy with social graces, but genuinely affectionate and genial. I was a bit dumbfounded by the final diagnosis and yet, I know that it’s correct.
At the same time, I have noticed that Ciaran is not developing the way I would expect him to. He often doesn’t respond to his name, or any sitmuli at all if he is engaged in something. His verbal communication is virtually non-existent and his non verbal communication is minimal. He’s active, and social within his family to some degree, but something is wrong and Dominic and I both know it. He has an evaluation on the 19th for his speech development, and I expect that we will be offered services through the school district. If I’m honest with myself I expect that I will receive a diagnosis that also puts him on the autism spectrum, like his older brother.
My emotions are mixed. No diagnosis changes who my child is. And I’m so lucky. My children are here, alive, and healthy. These diagnoses aren’t terminal. There is so much that can be done to make their lives easier and that’s what the official diagnosis offers us: tools. At the same time, I think about how challenging life will be for them and am slightly overwhelmed by the duty placed on Dominic and me to meet their needs. Even more, they need parents who measure up and get it right. I don’t want to fail them.
I picked up two books this evening. One about early signs and treatment for autism and one about helping your child with Asperger’s. I have them in front of me and I want to read them but a part of me also want to return them. While reading and learning about something has always been helpful for me there is still that part of me who wants to stick her fingers in her ears, close her eyes tightly, and wish it all away. I won’t do that, mind you, as the autodidact side is much stronger, but it is there.
I suppose in the end this is just another set of scenery for our life path and it really is a relief to understand why Reagan does some of the things he does. But I won’t pretend that I’m not having some difficulty with it. Even if it is irrational.




10 Comments
May 14, 2008 at 11:38 am
(((((hugs)))))
May 14, 2008 at 2:48 pm
I read your blog from time to time and enjoy your thoughtful postings. I am a homeschooling mom of an 8yo son who was diagnosed with Asperger’s four years ago. My youngest son is blind and nonverbal, but he attends a public school. Next year, my 8yo wants to go to school and I said “OK”. It’s exciting to see both of my boys progress. Their progress can also be frustratingly slow. Parents of special needs children never take any of their childrens’ accomplishments for granted. Each accomplishment is a celebration. Most of my current friends have special needs kids; they are some of the strongest and understanding people that I know. If you have never read the essay “Welcome to Holland”, I recommend it, even though at times it sounds like an annoying cliche. I’ll keep you and your family in my prayers.
-Claudia
May 14, 2008 at 8:12 pm
I totally understand how you feel. I just found out that my son Noah has aspergers adhd and a mood disorder. it is challenging and makes me want to cry. but iv found the more you educate yourself about it the more it helps you understand your aspie and help educate those around your child understand why they are different.
May 14, 2008 at 11:28 pm
Anne:
Well, if it’s any encouragement, my boss (I think you know who he is) has Asberger’s. I’m not posting his name here because that info isn’t for general consumption, but if you don’t know who he is, ask JH. One of the “benefits” of people with Asberger’s is that they sometimes grow up to be “world-changers” precisely because they think differently and solve problems differently. They say Einstein probably had Asberger’s. Praying for you and your family.
May 16, 2008 at 2:31 am
I work with young people, and I have a number of them who have Asberger’s and the only way I know they have this is that in some social settings when they are feeling extreme emotions they don’t always deal with the situations as well as non-asberger’s young people.
Certainly they have a great number of friends and have great social lives and seam to live life to the fully. What I really enjoy about these young people is their views. They seams to pick up on things or see things from angles I have never thought of.
Praying for you all.
May 16, 2008 at 9:23 pm
Sending love Anne. I know exactly what it feels like wanting to return books because part of your heart, your soul, isn’t read to accept the challenges ahead of you. There will come a time. And you aren’t wrong in any way wanting to embrace the time before the change. It will happen as it needs to. And I wish you guys lots of strength and love.
June 4, 2008 at 8:48 pm
Anne, you had been on my thoughts the last couple of weeks. I now realize that it was the prompting of the Holy Spirit in prayer…
I am walking a similar road- my son was just recently diagnosed with Sensory Processing Disorder (also on the spectrum). We will be walking this same adjustment period together…
Sending love and praying for strength, peace, and understanding. Hugs across the miles…
June 14, 2008 at 11:06 pm
((((hugs))))
June 15, 2008 at 11:56 am
So, Hubby and I quote from Mike Meyer’s movie, “So I Married an Axe-Murderer,” and the boys have picked up some of the lines from us.
One of my boys said something the other day and misspoke that it was from, “So I Married an Asperger’s.”
That brought a laugh to me, as I have several friends who are married to men who are either dx’d or un-dx’d but highly suspected to have Asperger’s.
Life will never be dull for your and your crew. Praying for you to have wisdom to nurture each of these little ones as they grow into the people God has created them to be.
June 15, 2008 at 8:38 pm
Well, thanks so much Tulipgirl. Now I’m going to be singing “If you want my body, and you think I’m sexy.” all night long while yelling “We have a piper Doown!” Actually I say that every time Piper falls on the floor.
Thanks for all the good wishes, but I only have that movie on VHS and too many legos in the VCR to make it work. /Cry
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